{"id":234,"date":"2023-09-05T13:44:22","date_gmt":"2023-09-05T11:44:22","guid":{"rendered":"https:\/\/cfnorge.bwod.dev\/?page_id=234"},"modified":"2025-10-20T15:39:44","modified_gmt":"2025-10-20T13:39:44","slug":"cf-norge","status":"publish","type":"page","link":"http:\/\/cfnorge.no.dev.exigo.no\/en\/","title":{"rendered":"CF Norge"},"content":{"rendered":"

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CF og PCD<\/h1>\n

[\/et_pb_text][et_pb_text _builder_version=»4.21.0″ _module_preset=»default» text_font=»Poppins|300|||||||» text_text_color=»gcid-26e97d0d-b127-4ce1-b597-0df3fb01df24″ text_font_size=»16px» text_line_height=»1.8em» header_3_text_color=»gcid-26e97d0d-b127-4ce1-b597-0df3fb01df24″ custom_margin=»||20px|||» global_colors_info=»{%22gcid-26e97d0d-b127-4ce1-b597-0df3fb01df24%22:%91%22text_text_color%22,%22header_3_text_color%22%93}»]<\/p>\n

Cystic Fibrosis (CF) is a congenital, severe genetic disorder that causes thick mucus to build up in the lungs, making them prone to infections.<\/p>\n

Primary Ciliary Dyskinesia (PCD) is a rare congenital condition caused by defects in the structure and function of the cilia, leading to mucus accumulation in the upper and lower airways.<\/span><\/p>\n

The Norwegian Association for Cystic Fibrosis (NFCF) is an organization for individuals diagnosed with cystic fibrosis and primary ciliary dyskinesia, as well as their families and caregivers.\u00a0<\/span><\/p>\n

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CF og PCD<\/h1>\n

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Cystic Fibrosis (CF) is a congenital, severe genetic disorder that causes thick mucus to build up in the lungs, making them prone to infections.\u00a0<\/span><\/p>\n

[\/et_pb_text][et_pb_image src=»http:\/\/cfnorge.no.dev.exigo.no\/wp-content\/uploads\/2024\/09\/lunger-nettside-CF-Mobil.png» title_text=»lunger-nettside-CF-Mobil» _builder_version=»4.21.0″ _module_preset=»default» global_colors_info=»{}»][\/et_pb_image][et_pb_text _builder_version=»4.21.0″ _module_preset=»default» text_font=»Poppins|300|||||||» text_text_color=»gcid-26e97d0d-b127-4ce1-b597-0df3fb01df24″ text_font_size=»16px» text_line_height=»1.8em» header_3_text_color=»gcid-26e97d0d-b127-4ce1-b597-0df3fb01df24″ max_width=»80%» module_alignment=»center» custom_margin=»||38px|||» global_colors_info=»{%22gcid-26e97d0d-b127-4ce1-b597-0df3fb01df24%22:%91%22text_text_color%22,%22header_3_text_color%22%93}»]<\/p>\n

Primary Ciliary Dyskinesia (PCD) is a rare congenital condition caused by defects in the structure and function of the cilia, leading to mucus accumulation in the upper and lower airways.<\/span><\/p>\n

The Norwegian Association for Cystic Fibrosis (NFCF) is an organization for individuals diagnosed with cystic fibrosis and primary ciliary dyskinesia, as well as their families and caregivers.\u00a0<\/span><\/p>\n

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NEWS AND ARTICLES<\/h2>\n

[\/et_pb_text][\/et_pb_column][\/et_pb_row][et_pb_row _builder_version=»4.21.0″ _module_preset=»default» custom_margin=»|auto|0px|auto|false|false» custom_padding=»||0px||false|false» locked=»off» global_colors_info=»{}»][et_pb_column type=»4_4″ _builder_version=»4.21.0″ _module_preset=»default» global_colors_info=»{}»][et_pb_blog fullwidth=»off» posts_number=»2″ include_categories=»all» use_manual_excerpt=»off» excerpt_length=»180″ show_more=»on» show_author=»off» show_date=»off» show_pagination=»off» masonry_tile_background_color=»RGBA(255,255,255,0)» disabled_on=»on|off|on» _builder_version=»4.21.0″ _module_preset=»default» header_font=»Poppins||||||||» header_text_color=»gcid-26e97d0d-b127-4ce1-b597-0df3fb01df24″ header_line_height=»1.2em» body_font=»Poppins|300|||||||» body_text_align=»left» body_text_color=»gcid-26e97d0d-b127-4ce1-b597-0df3fb01df24″ meta_font=»|700||on|||||» meta_text_color=»gcid-f60bfea8-f451-489d-8bfd-27e12ee36365″ meta_font_size=»12px» read_more_font=»Poppins|||on|||||» read_more_text_color=»gcid-edcc47c2-e936-4ba2-8e6c-8ca8cb2c2a05″ read_more_font_size=»16px» read_more_line_height=»2.6em» body_link_font=»Poppins|600|||||||» background_color=»RGBA(255,255,255,0)» text_orientation=»left» hover_enabled=»0″ border_width_all=»0px» border_radii_image=»off|15px|15px||» global_colors_info=»{%22gcid-edcc47c2-e936-4ba2-8e6c-8ca8cb2c2a05%22:%91%22read_more_text_color%22%93,%22gcid-26e97d0d-b127-4ce1-b597-0df3fb01df24%22:%91%22body_text_color%22,%22header_text_color%22%93,%22gcid-f60bfea8-f451-489d-8bfd-27e12ee36365%22:%91%22meta_text_color%22%93}» show_categories=»off» sticky_enabled=»0″][\/et_pb_blog][et_pb_blog fullwidth=»off» posts_number=»3″ include_categories=»all» use_manual_excerpt=»off» excerpt_length=»180″ show_more=»on» show_author=»off» show_date=»off» show_pagination=»off» masonry_tile_background_color=»RGBA(255,255,255,0)» disabled_on=»off|on|off» _builder_version=»4.21.0″ _module_preset=»default» header_font=»Poppins||||||||» header_text_color=»gcid-26e97d0d-b127-4ce1-b597-0df3fb01df24″ header_line_height=»1.2em» body_font=»Poppins|300|||||||» body_text_align=»left» body_text_color=»gcid-26e97d0d-b127-4ce1-b597-0df3fb01df24″ meta_font=»|700||on|||||» meta_text_color=»gcid-f60bfea8-f451-489d-8bfd-27e12ee36365″ meta_font_size=»12px» read_more_font=»Poppins|||on|||||» read_more_text_color=»gcid-edcc47c2-e936-4ba2-8e6c-8ca8cb2c2a05″ read_more_font_size=»16px» read_more_line_height=»2.6em» body_link_font=»Poppins|600|||||||» background_color=»RGBA(255,255,255,0)» text_orientation=»left» hover_enabled=»0″ border_width_all=»0px» border_radii_image=»off|15px|15px||» global_colors_info=»{%22gcid-edcc47c2-e936-4ba2-8e6c-8ca8cb2c2a05%22:%91%22read_more_text_color%22%93,%22gcid-26e97d0d-b127-4ce1-b597-0df3fb01df24%22:%91%22body_text_color%22,%22header_text_color%22%93,%22gcid-f60bfea8-f451-489d-8bfd-27e12ee36365%22:%91%22meta_text_color%22%93}» show_categories=»off» sticky_enabled=»0″][\/et_pb_blog][\/et_pb_column][\/et_pb_row][et_pb_row _builder_version=»4.21.0″ _module_preset=»default» custom_margin=»0px||||false|false» custom_padding=»0px||||false|false» global_colors_info=»{}»][et_pb_column type=»4_4″ _builder_version=»4.21.0″ _module_preset=»default» global_colors_info=»{}»][et_pb_text _builder_version=»4.21.0″ _dynamic_attributes=»link_option_url» _module_preset=»default» link_font=»Poppins|700|||on||||» link_text_color=»gcid-26e97d0d-b127-4ce1-b597-0df3fb01df24″ link_font_size=»16px» header_2_font=»Poppins|600|||||||» header_2_text_color=»gcid-26e97d0d-b127-4ce1-b597-0df3fb01df24″ custom_margin=»1px|||||» link_option_url=»@ET-DC@eyJkeW5hbWljIjp0cnVlLCJjb250ZW50IjoicG9zdF9saW5rX3VybF9wYWdlIiwic2V0dGluZ3MiOnsicG9zdF9pZCI6IjI1NSJ9fQ==@» global_colors_info=»{%22gcid-26e97d0d-b127-4ce1-b597-0df3fb01df24%22:%91%22header_2_text_color%22,%22link_text_color%22%93}»]<\/p>\n

See all news and articles here ><\/a><\/p>\n

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Number of people with CF in Norway<\/h3>\n

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Adults<\/h3>\n

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Children<\/h3>\n

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TREATMENT WITH KAFTRIO<\/h2>\n

Cystic fibrosis requires comprehensive multidisciplinary treatment provided by CF-competent healthcare professionals. The treatment is time-consuming for both the patient and the patient's family. Kaftrio is medicine that makes life easier.<\/p>\n

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PCD \u2013 Primary Ciliary Dyskinesia<\/h2>\n

Through <\/span>CF<\/span> <\/span>Norway,<\/span> PCD patients will have the opportunity to contact others in the same situation and good professional information through a common channel. Read more about PCD and CFNorge's offer for those with PCD.<\/span><\/p>\n

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PCD \u2013 Primary Ciliary Dyskinesia<\/h2>\n

Through <\/span>CF<\/span> <\/span>Norway,<\/span> PCD patients will have the opportunity to contact others in the same situation and good professional information through a common channel. Read more about PCD and CFNorge's offer for those with PCD.<\/span><\/p>\n

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NFCF operates through an employed managing director, who can be reached at<\/span>post@nfcf.no<\/span><\/a>, an elected <\/span>board<\/span>,\u202f<\/a><\/span>four regional boards<\/span><\/a>,<\/a> samt et fagr\u00e5d. Vi har ogs\u00e5 et eget ungdomsr\u00e5d som ivaretar interessene til unge mellom 13 og 25 \u00e5r\u202fmed CF.<\/span><\/p>\n

NFCF\u2019s Fagr\u00e5d\u202fer tverrfaglig og best\u00e5r av leger, fysioterapeut, sykepleiere og annet helsepersonell. Medlemmene i fagr\u00e5det representerer alle de fire helseregionene i Norge. Fagr\u00e5det h\u00e5ndterer alle saker med faglige aspekter og samarbeider tett med foreningens styre. Det finnes frittst\u00e5ende faglige nettverk av sykepleiere og fysioterapeuter som jobber med CF, og disse nettverkene har f\u00e5tt tildelt st\u00f8tte til \u00e5rlige fagm\u00f8ter fra NFCF\u2019s fagr\u00e5dsmidler. NFCFs ungdomsr\u00e5d\u202fbest\u00e5r av to ungdomsrepresentanter fra hver region, til sammen \u00e5tte representanter. En av representantene m\u00f8ter ogs\u00e5 i styret.<\/p>\n

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NFCF is a member of<\/span>Funksjonshemmedes fellesforbund (FFO)<\/span><\/a>within the small group's secretariat. We are also a member of<\/span>Unge funksjonshemmede<\/span><\/a>. Additionally, NFCF is one of six patient organizations supporting<\/span>Stiftelsen organdonasjon<\/span><\/a>, which works to promote and disseminate knowledge about organ donation.<\/span>\u00a0<\/span><\/p>\n

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NFCF offers a nationwide network of contact persons known as ''Likepersoner'', (peer supporters) available to assist those who need someone to talk to. Likepersoner includes parents of children with CF and adults living with CF themselves. You are welcome to reach out to any of our likepersoner directly. Additionally, we have closed Facebook groups where you can connect and converse with others who share similar experiences. <\/span><\/p>\n

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NFCF supports healthcare professionals working with CF in Norway, allowing them to hold meetings and gatherings. Such funds are announced here on<\/span>cfnorge.no<\/span> Read more about professional council funds here.<\/a><\/p>\n

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The Norwegian Center for Cystic Fibrosis (NSCF)<\/span>was established at Oslo University Hospital in the fall of 1998. NSCF is part of<\/span>the\u202fNational Competence Service for Rare Diagnoses (NKSD).<\/span>\u00a0<\/span><\/p>\n

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Support us<\/h2>\n

We are grateful for all
contributions to our work.<\/h3>\n

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Support us<\/h2>\n

We are grateful for all
contributions to our work.<\/h3>\n

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CF og PCDCystisk fibrose (CF) er en medf\u00f8dt, alvorlig genetisk multiorgansykdom som f\u00f8rer til seigt slim i lungene, som skaper grobunn for infeksjoner. Prim\u00e6r cili\u00e6r dyskinesi (PCD) er en sjelden og medf\u00f8dt sykdom som skyldes en feil i de bevegelige flimmerh\u00e5renes oppbygning og funksjon og f\u00f8rer til opphopning av slim i \u00f8vre og nedre luftveier. 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